Brandon

Hi there!! At last I found a site who support this disease.

We are from Worcester in South Africa. My boy, Brandon, now 1 year and 3 weeks old. was diagnosed with Glanzmans disease when he was five months old. We discovered it when we saw that he 's got like blue spots every where and the slightest bump or touch will leave a blue spot. We went to Tygerberg hospital where they diagnosed him.

I don't know where it came from because neither my husband or my family have a history of this.

Well our first experience was when he was seven months old. He was in his walking ring when he fell from stairs and landed on his face. His teeth cut his lip and there was severe bleeding. It just wouldn't stop. So we went to the hospital in Worcester and they told me there was no medicine to give to him.

Although they had the report from Tygerberg hospital. I was devastated. So the following morning I phoned the professor who did all the test on Brandon and he phoned my GP for a prescription for medication to stop the bleeding. After he took the medicine he stopped with the bleeding. He bled more than 16 hours non stop.

At this stage I made peace with the disease, but no where there is a support group to help me. I want to know how to tell my baby boy he can't climb that obstacle or he cannot play rugby. Tell me how do you do that to a boy!!!!

Loving Mom

e-mail Tina